Edmond Man With Rare Disease Goes The Extra Mile For a Cure - NewsOn6.com - Tulsa, OK - News, Weather, Video and Sports - KOTV.com |

Edmond Man With Rare Disease Goes The Extra Mile For a Cure

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EDMOND, Oklahoma -

Last month, we told you about an Edmond man who suffers from a rare disorder known as Ataxia Telangiectasia (AT), which affects just 500 people around the world.

On Black Friday, Jeff Kummer decided he wanted to ‘ride' a marathon on his recumbent exercise bike non-stop to raise money for the A-T Children's Project.

11/17/2013 Related Story: Edmond Man With Rare Disease To 'Ride' Marathon On Black Friday

He more than met his goal, both financially and physically.

"During the actual ride, as I approached mile 25, I felt really strong," Jeff said in a letter to his friends and family. "I passed 26.2 miles in two hours and 46 minutes."

Feeling so good, Jeff said he kept on pedaling, eventually going another half marathon (13.1 miles). He didn't stop there. He rounded off his ride at 40 miles non-stop and completed it in four hours and 26 minutes.

Jeff's fundraising goal was $10,000 dollars, but like his ride, the numbers kept rising and in the end he raised more than $23,000 for the A-T Children's Project to be used for more research in hopes of finding a treatment and cure for A-T.

"I want to thank everyone for your support, donations, kind words and prayers," he said. "It truly lifted me up."

So much so, that Jeff said he may consider doing it again next year.

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